Familial Cardiomyopathy Clinic
The Familial Cardiomyopathy clinic at UCSF provides multidisciplinary care for individuals who have or are at risk for inherited cardiomyopathies (heart muscle disorders). We aim to help patients and families determine whether they have familial cardiomyopathy, recommend treatment, and estimate the impact on their future health and health of their family members.
You will meet with a cardiologist with expertise in familial cardiomyopathies, have an EKG, echocardiogram (heart ultrasound) or other tests to aid in diagnosis or ongoing treatment decisions, and/or meet with a genetic counselor to discuss genetic concerns related to your medical history and/or family history. If appropriate, the genetic counselor will discuss genetic testing, important medical and personal issues to consider about genetic testing for inherited cardiomyopathies, and the potential implications for you and your family members. The genetic counselor and cardiologist communicate their findings to provide recommendations for follow-up care for you and your family members. We may also discuss potential research opportunities as appropriate based on your condition and interest. All research involvement is optional and your participation does not affect your medical care.