For Patients
We do our best to provide exceptional care for every patient. To learn more about amyloidosis and our services, click on the links below:
- Make an Appointment
- Patient Guide to Amyloidosis
- What to Expect At Your Visit
- Amyloidosis Organizations
Make an Appointment
To make a clinic appointment with one of the specialists in UCSF's Amyloid Service, contact our new patient coordinator at:
UCSF Cardiac Amyloid Program
400 Parnassus Avenue, 5th floor
San Francisco, CA 94143
Phone number: (415) 353-9088 (available 24/7)
Fax number: (415) 353-3889
Hematology and Blood and Marrow Transplant Clinic
400 Parnassus Ave, 4th Floor
San Francisco, CA 94143
Phone for existing patients: (415) 353-2421
Phone for new patients: (415) 353-2051
Fax: (415) 353-2467
Patient Guide to Amyloidosis
What to Expect At Your Visit
Amyloid is a multi-system disease that often requires care from providers across different disciplines. Our team works together to coordinate between cardiologists, hematologists, oncologists, among others to provide the best, most comprehensive care possible. At your visit, you will be guided to see the appropriate providers. If your provider thinks you may have amyloidosis, a biopsy may be performed on the site wherein the suspected amyloid deposits are located. A biopsy uses a needle to remove a small amount of tissue to test for the disease and is almost always an outpatient procedure.
Amyloidosis Related Organizations
Amyloidosis Foundation – The Amyloidosis Foundation strives to heighten awareness of Amyloidosis while facilitating interactions between those affected by amyloidosis and experienced medical and emotional support groups.
Amyloidosis Support Groups – ASG is a nonprofit corporation whose primary purpose is to bring together all who are affected by amyloidosis through nationwide support group meetings, online discussion groups, and a 24-hour hotline.
Leukemia and Lymphoma Society — LLS is dedicated to improving the quality of life of patients with leukemia, lymphoma, Hodgkin’s disease, and myeloma. This organization serves as a source of information for patients throughout their cancer journeys.
Northern California Amyloidosis Support Group — The Northern California Amyloidosis Support Group meets on Saturdays four times a year. Patients have the opportunity to share stories, listen to guest speakers, and support one another.