2022 UCSF Genetics Family Support Meeting

Class/Info Session,
Lecture/Seminar,
Wellness
A one-day educational seminar for patients with inherited heart rhythm disorders or cardiomyopathies, and their families. 
-

Location: Zoom Meeting. Contact [email protected] for the Zoom link.  

Hosted by UCSF Comprehensive Genetic Arrhythmia Program (CGAP) 

Agenda 

Time Topic and Presenter 

10:00am - 10:05am

Welcoming / Introduction / Program Overview by Dr. Melvin Scheinman

10:10am – 10:30am

Topic: What are Genetic Disorders? Speaker: Dr. Robert Nussbaum

10:35am – 10:55am

Topic: What are channelopathies (Long QT, Brugada, CPVT)? Speaker: Dr. Melvin Scheinman

11:00am – 11:20am

Topic: Advances in the Treatment of ARVC Speaker: Dr. Hugh Calkins (pre-recorded)

11:25am - 11:45am

Topic: Advances in the Treatment of Hypertrophic Myopathies Speaker: Dr. Theodore Abraham

11:50am - 12:10pm

Topic: Overview of the future / envisioned therapies (e.g. gene therapy) for inherited arrhythmia syndromes, and the challenges? Speaker: Dr. Vasanth Vedantham

12:15pm - 1:00pm

LUNCH BREAK

1:00pm - 1:20pm

Topic: Drugs to avoid Speaker: Dr. Kurt Hoffmayer

1:25pm - 1:45pm

Topic: Exercise Recommendations Speaker: Dr. Marco Perez

1:50pm - 2:10pm

Topic: Pediatric Perspective Speaker: Dr. Ron Tanel

2:15pm - 2:35pm

Topic: Psychosocial challenges in children Speaker: Nicole Haupert, NP

2:40pm - 3:00pm

Topic: Living with your defibrillator Speaker: Dr. Byron Lee

3:05pm - 3:25pm

Topic: From patient to family: genetic counseling in cardiology Speaker: Julianne Wojciak (Genetic Counselor)

3:30pm - 3:50pm

Topic: Family planning for people with genetic mutations Speaker: Emily Higgs (Genetic Counselor)

3:50pm - 4:00pm

BREAK

4:00pm - 5:00pm

Panel Discussion Moderator: Dr. Scheinman

Event Inquiries, please contact:
David Krauth (Comprehensive Genetic Arrhythmia Program)
Phone: 415-514-7310 / E-mail: [email protected]

Add to Calendar 2022-05-21 10:00:00 2022-05-21 17:00:00 2022 UCSF Genetics Family Support Meeting Location: Zoom Meeting. Contact [email protected] for the Zoom link.   Hosted by UCSF Comprehensive Genetic Arrhythmia Program (CGAP)  Agenda  Time Topic and Presenter  10:00am - 10:05am Welcoming / Introduction / Program Overview by Dr. Melvin Scheinman 10:10am – 10:30am Topic: What are Genetic Disorders? Speaker: Dr. Robert Nussbaum 10:35am – 10:55am Topic: What are channelopathies (Long QT, Brugada, CPVT)? Speaker: Dr. Melvin Scheinman 11:00am – 11:20am Topic: Advances in the Treatment of ARVC Speaker: Dr. Hugh Calkins (pre-recorded) 11:25am - 11:45am Topic: Advances in the Treatment of Hypertrophic Myopathies Speaker: Dr. Theodore Abraham 11:50am - 12:10pm Topic: Overview of the future / envisioned therapies (e.g. gene therapy) for inherited arrhythmia syndromes, and the challenges? Speaker: Dr. Vasanth Vedantham 12:15pm - 1:00pm LUNCH BREAK 1:00pm - 1:20pm Topic: Drugs to avoid Speaker: Dr. Kurt Hoffmayer 1:25pm - 1:45pm Topic: Exercise Recommendations Speaker: Dr. Marco Perez 1:50pm - 2:10pm Topic: Pediatric Perspective Speaker: Dr. Ron Tanel 2:15pm - 2:35pm Topic: Psychosocial challenges in children Speaker: Nicole Haupert, NP 2:40pm - 3:00pm Topic: Living with your defibrillator Speaker: Dr. Byron Lee 3:05pm - 3:25pm Topic: From patient to family: genetic counseling in cardiology Speaker: Julianne Wojciak (Genetic Counselor) 3:30pm - 3:50pm Topic: Family planning for people with genetic mutations Speaker: Emily Higgs (Genetic Counselor) 3:50pm - 4:00pm BREAK 4:00pm - 5:00pm Panel Discussion Moderator: Dr. Scheinman Event Inquiries, please contact: David Krauth (Comprehensive Genetic Arrhythmia Program) Phone: 415-514-7310 / E-mail: [email protected] [email protected] UCSF Cardiology America/Los_Angeles public